Support Groups

Support groups serve a vital role. If you are a member of a support group and would like your group included in our listing, please contact us.

• Acid Maltase Deficiency Association  
• Aicardi Syndrome Foundation  
• Angelman Syndrome Foundation, Inc.  
• Ara Parseghian Medical Research Foundation  
• A & T Children's Project  
• Ataxia Telangiectasis Children's Project  
• Autism Research Institute  
• Autism Speaks  
• Autism Society of America  
• Batten Disease Support and Research Association  
• Benign Essential Blepharospasm Research Foundation  
• Blazeman Foundation for ALS  
• The Carbohydrate-Deficient Glycoprotein Syndrome Family Network  
• The Carter Centers for Brain Research in Holoprosencephaly and Related Malformations  
• Charcot-Marie-Tooth Association  
• Conquer Chiari
• Cornelia de Lange Syndrome - USA Foundation, Inc.  
• Cystic Fibrosis Foundation  
• FacioScapuloHumeral Society, Inc.  
• Families of Spinal Muscular Atrophy  
• FRAXA Research Foundation  
• The Genetic Alliance  
• The Global Foundation for Peroxisomal Disorders  
• Huntingtom's Disease Society of America  
• Hydrocephalus Association  
• International Organization of Glutaric Acidemia  
• International Rett Syndrome Association  
• Jacob's Cure  
• Klippel-Trenaunay Support Group  
• Lissencephaly Network, Inc.  
• Lowe Syndrome Association, Inc.
• LuMind Research Down Syndrome Foundation 
• MAAP Services for Autism and Asperger Syndrome  
• M-CM Network (Megalencephaly)
• Menieres.org  
• MLD Foundation  
• Multiple Sclerosis Association of America  
• National Ataxia Foundation  
• National Down Syndrome Society  
• National Fragile X Foundation  
• National Hydrocephalus Foundation  
• National Institute of Arthritis and Musculoskeletal and Skin Diseases  
• National MPS Society, Inc.  
• National Neurofibromatosis Foundation  
• National Niemann-Pick Disease Foundation, Inc.  
• National Organization for Rare Disorders  
• National Spasmodic Dysphonia Association  
• National Spasmodic Torticollis Association  
• National Tay-Sachs and Allied Diseases Assocation, Inc.  
• NBIA Disorders Association  
• Neurofibromatosis, Inc.  
• New Horizons Un-Limited, Inc.  
• Prader-Willi Syndrome Association, USA  
• SDS/MSA Support Group, Inc.  
• Sickle Cell Disease Assocation of America, Inc.  
• Spasmodic Torticollis Dystonia, Inc.  
• Spinal Muscular Atrophy Foundation  
• The Sturge-Weber Foundation  
• Tuberous Sclerosis Alliance  
• United Cerebral Palsy Association, Inc.  
• United Leukodystrophy Foundation, Inc.  
• United Mitochondrial Disease Foundation 
• Vascular Birthmarks Foundation