Bookmark and Share

Introduction to the UMB Brain & Tissue Bank

butterfly logo

Thank you for considering brain and tissue donation for research. Hundreds of different disorders affect children in childhood and into adulthood. Our goal is to speed the day that these disorders no longer diminish the quality or length of life of our children.

FUNCTION OF THE UMB BRAIN AND TISSUE BANK

  • Accepts pre-registration for future tissue donations.
  • Arranges to recover brain and other affected tissue within approximately 24 hours after death.
  • Screens researchers who request tissue samples for approved research studies.

The UMB BTB is funded by the National Institute of Health to collect tissue from many disorders, especially disorders that start in childhood. Brain donations are accepted from affected donors of any age. Some examples are the following:

  • Autism Spectrum Disorder
  • Fragile X syndrome
  • Down syndrome and other chromosomal disorders
  • Tuberous Sclerosis
  • Sturge-Weber syndrome and other birthmark disorders
  • Muscular dystrophies
  • Mitochondrial disorders
  • Prader-Willi syndrome
  • Hundreds of other disorders of childhood
  • Amyotrophic Lateral Sclerosis (ALS)
  • Parkinson Disease
  • Various movement disorders
  • The Bank also accepts brain and tissue donations from blood relatives of anyone with a developmental disorder listed above (unless the relative has cancer).
  • Please contact the Bank with questions regarding other disorders.

At this time the UMB BTB is NOT collecting tissue from individuals with the following disorders:

  • Alzheimer Disease
  • Psychiatric Disorders
  • Individuals with communicable diseases
  • Anyone with cancer
  • Individuals without any disorder

Complete a registration form. For more information, click on the tabs on the left menu. You can also e-mail the UMB BTB with questions.

If tissue donation is imminent, CALL 1-800-847-1539 in the continental US or 1-410-706-1755.

Registration is not complete until staff reviews the registration material.