Useful Links for Study Participants

Research Participant Information

• ClinicalTrials.gov: The government's Clinical Trials site provides patients, family members, and members of the public easy and free access to information on clinical studies for a wide range of diseases and conditions.
• GetResearchSmart.org: This website provides a variety of resources for use by persons who are considering participation in research.
• The Center for Information & Study on Clinical Research Participation: This nonprofit organization is dedicated to educating the public, research community, media and policy makers about clinical research participation and the role that each of them play.
• Clinical Trials and Insurance Coverage from NCI: This site is a resource guide to help you understand the critical issue of how to cover the costs of care.

Informed Consent Process

• A Guide to Understanding Informed Consent: This guide from the National Cancer Institute will tell you what to expect during the informed consent process, explain its importance to clinical research participants, and describe how it fits into a larger system that protects the welfare of people who take part in clinical trials.
• Is a Research Study for You?: The Medical College of Wisconsin, with support by the National Institutes of Health, presents a guide to understanding your rights and responsibilities as a participant in a research study.
• Children's Assent to Clinical Trial Participation: This guide from the National Cancer Institute is aimed at parents considering enrolling their children in a clinical trial.

General Health Information

• NIH Health Information: This website links you to information about specific diseases and conditions.
• MedlinePlus: MedlinePlus brings together authoritative information from National Library of Medicine, the National Institutes of Health (NIH), and other government agencies and health-related organizations to help answer health questions.
• Genetics Home Reference: This site of the National Library of Medicine is a consumer-friendly guide to understanding genetic conditions and the effects of genetic variations on human health.

Return to Participant Resources Page

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