The BRAIN AND TISSUE BANK is established to advance the research of developmental disorders. The objective of this human tissue repository is to systematically collect, store, and distribute brain and other tissues for research dedicated to the improved understanding, care and treatment of individuals with developmental disorders. The National Institute of Child Health and Human Development has funded an additional bank with a common mission.
The recipient of tissue and the BRAIN AND TISSUE BANK are required to sign a Tissue Transfer Agreement before any tissues are transferred. The Agreement specifies that the recipient has obtained approval from the recipient's Institutional Review Board and agrees to abide by NIH-required semiannual confidential progress reports and NIH-required reimbursement for tissue processing. All requests for tissue must be in writing to the BRAIN AND TISSUE BANK.
The BRAIN AND TISSUE BANKS
have extensive experience in arranging for the rapid retrieval of tissue
upon the death of individuals who die while at home, in hospitals
or hospice care. As a special service, the BRAIN AND TISSUE BANKS
are able to asist researchers who are working with patients who intend
to donate tissues at the time of their death. Immediately after retrieval
of the tissue, the BRAIN AND TISSUE BANKS will forward needed tissue to
the referring investigators and ensure proper storage and cataloging of
any additional tissues as part of the BRAIN AND TISSUE BANKS.
Of special interest are
individuals with Downs Syndrome and other chromosomal defects, mitochondrial
encephalopathies, phenylketonuria and other aminoacidopathies, maternal
PKU, Rett syndrome, leukodystrophies, lysosomal disorders, dyslexia, autism,
and other neurodevelopmental disorders.
The collection protocol has
been reviewed and approved by the Institutional Review Board of the University
of Maryland at Baltimore.
WARNING!!! ALL INFORMATION WHICH APPEARS AS PART OF THE BRAIN AND TISSUE BANK IS THE PROPERTY OF THE NATIONAL INSTITUTES OF HEALTH AND THE UNIVERSITY OF MARYLAND. NO INFORMATION CAN BE DISTRIBUTED OR USED FOR RESEARCH PURPOSES OR ANY OTHER PURPOSE WITHOUT THE WRITTEN APPROVAL FROM THE UNIVERSITY OF MARYLAND BRAIN AND TISSUE BANK AND THE NATIONAL INSTITUTES OF HEALTH.