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Support groups serve a vital role. To visit the support group of your choice, click the
hypertext of the name of the support group listed below. Your selection will be opened in a new window. (To return
to the Brain and Tissue Bank, select its window under the Window option in your browser.)
If you are a member of
a support group and would like your group included in our listing, please contact us. |
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Acid Maltase Deficiency Association |
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Aicardi Syndrome Foundation |
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Angelman Syndrome Foundation, Inc. |
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Ara Parseghian Medical Research Foundation |
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A & T Children's Project |
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Ataxia Telangiectasis Children's Project |
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Autism Research Institute |
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Autism Speaks |
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Autism Society of America |
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Batten Disease Support and Research Association |
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Benign Essential Blepharospasm Research Foundation |
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Blind Children's Fund |
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The Carbohydrate-Deficient Glycoprotein Syndrome Family Network |
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The Carter Centers for Brain Research in Holoprosencephaly and Related Malformations |
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Charcot-Marie-Tooth Association |
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Cornelia de Lange Syndrome - USA Foundation, Inc. |
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Cure Autism Now |
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Cystic Fibrosis Foundation |
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Dystonia Medical Research Foundation |
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FacioScapuloHumeral Society, Inc. |
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Families of Spinal Muscular Atrophy |
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FRAXA Research Foundation |
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The Genetic Alliance |
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Huntingtom's Disease Society of America |
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Hydrocephalus Association |
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International Organization of Glutaric Acidemia |
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International Rett Syndrome Association |
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Jacob's Cure |
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Klippel-Trenaunay Support Group |
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Lissencephaly Network, Inc. |
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Lowe Syndrome Association, Inc. |
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MAAP Services for Autism and Asperger Syndrome |
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Meniere's Network |
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MLD Foundation |
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Multiple Sclerosis Association of America |
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National Ataxia Foundation |
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National Down Syndrome Society |
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National Fragile X Foundation |
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National Hydrocephalus Foundation |
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National Institute of Arthritis and Musculoskeletal and Skin Diseases |
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National MPS Society, Inc. |
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National Neurofibromatosis Foundation |
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National Niemann-Pick Disease Foundation, Inc. |
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National Organization for Rare Disorders |
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National Spasmodic Dysphonia Association |
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National Spasmodic Torticollis Association |
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National Tay-Sachs and Allied Diseases Assocation, Inc. |
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NBIA Disorders Association |
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Neurofibromatosis, Inc. |
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New Horizons Un-Limited, Inc. |
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Prader-Willi Syndrome Association, USA |
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SDS/MSA Support Group, Inc. |
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Sickle Cell Disease Assocation of America, Inc. |
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Spasmodic Torticollis Dystonia, Inc. |
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Spinal Muscular Atrophy Foundation |
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The Sturge-Weber Foundation |
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Tuberous Sclerosis Alliance |
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United Cerebral Palsy Association, Inc. |
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United Leukodystrophy Foundation, Inc. |
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United Mitochondrial Disease Foundation |
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