Support groups serve a vital role. To visit the support group of your choice, click the hypertext of the name of the support group listed below. Your selection will be opened in a new window. (To return to the Brain and Tissue Bank, select its window under the Window option in your browser.)

     
If you are a member of a support group and would like your group included in our listing, please contact us.
     
  Acid Maltase Deficiency Association  
  Aicardi Syndrome Foundation  
  Angelman Syndrome Foundation, Inc.  
  Ara Parseghian Medical Research Foundation  
  A & T Children's Project  
  Ataxia Telangiectasis Children's Project  
  Autism Research Institute  
  Autism Speaks  
  Autism Society of America  
  Batten Disease Support and Research Association  
  Benign Essential Blepharospasm Research Foundation  
  Blind Children's Fund  
  The Carbohydrate-Deficient Glycoprotein Syndrome Family Network  
  The Carter Centers for Brain Research in Holoprosencephaly and Related Malformations  
  Charcot-Marie-Tooth Association  
  Cornelia de Lange Syndrome - USA Foundation, Inc.  
  Cure Autism Now  
  Cystic Fibrosis Foundation  
  Dystonia Medical Research Foundation  
  FacioScapuloHumeral Society, Inc.  
  Families of Spinal Muscular Atrophy  
  FRAXA Research Foundation  
  The Genetic Alliance  
  Huntingtom's Disease Society of America  
  Hydrocephalus Association  
  International Organization of Glutaric Acidemia  
  International Rett Syndrome Association  
  Jacob's Cure  
  Klippel-Trenaunay Support Group  
  Lissencephaly Network, Inc.  
  Lowe Syndrome Association, Inc.  
  MAAP Services for Autism and Asperger Syndrome  
  Meniere's Network  
  MLD Foundation  
  Multiple Sclerosis Association of America  
  National Ataxia Foundation  
  National Down Syndrome Society  
  National Fragile X Foundation  
  National Hydrocephalus Foundation  
  National Institute of Arthritis and Musculoskeletal and Skin Diseases  
  National MPS Society, Inc.  
  National Neurofibromatosis Foundation  
  National Niemann-Pick Disease Foundation, Inc.  
  National Organization for Rare Disorders  
  National Spasmodic Dysphonia Association  
  National Spasmodic Torticollis Association  
  National Tay-Sachs and Allied Diseases Assocation, Inc.  
  NBIA Disorders Association  
  Neurofibromatosis, Inc.  
  New Horizons Un-Limited, Inc.  
  Prader-Willi Syndrome Association, USA  
  SDS/MSA Support Group, Inc.  
  Sickle Cell Disease Assocation of America, Inc.  
  Spasmodic Torticollis Dystonia, Inc.  
  Spinal Muscular Atrophy Foundation  
  The Sturge-Weber Foundation  
  Tuberous Sclerosis Alliance  
  United Cerebral Palsy Association, Inc.  
  United Leukodystrophy Foundation, Inc.  
  United Mitochondrial Disease Foundation