Bob and Debra, tell us about Scott...
As Scott's parents we have been blessed to have him in our lives. His brother and sister also know we were very fortunate that he blessed their lives. Scott was such a good kid...always thinking of others. He also was gentle. He loved animals in a mystical way. He told me once life was a big fish bowl. We were all animals of God. Some people believe that and say creatures of God.     We realized a few years ago when it sunk in that we would eventually loose Scott, that no one should go through this. No family or person. We then decided that Scott's body (brain and tissue) should be used for research. Scott's spirit is running free of the ravages of his illness. We were also told a cure for Niemann-Pick Type C (NPC) would bring researchers closer to cures of many other diseases, because of some of the common links.     Scott's body was only the vessel that carried his spirit though this world. It is not truly Scott. So use of the body parts for research would help, maybe many people. So Scott lives on. That is why I am so concerned that the researchers are aware of his gift to them. He can physically be part of the cure.     It is also very cool that he is at University of Maryland...Fear the turtle. We live in Rhode Island...and Scott made me stop many times to take a turtle off the road, so it wouldn't get run over. He had a love for nature and just maybe he can help find a cure for NPC.