I am the parent of a child born with severe hydrocephalus. Jeffrey's diagnosis came
before birth and changed the lives of those around him forever. By the time he was delivered, his brain had been
badly compressed and there were questions about whether his brain developed normally. Despite a devastating early
prognosis, Jeffrey's d evelopment has been exceptional. Many have called him a miracle and yet we face many uncertainties in
Jeffrey's future as do all people affected by this disorder. Our decision to register Jeffrey and other members
of the immediate family as brain donors is not a decision about death; it is a decision about life. I hope that
one day there are many more children just like Jeffrey, children who have beaten the enormous odds against them,
children who enjoy good health and normal development despite the diagnosis of hydrocephalus. I am asking that
you consider the opportunity to register as a donor assuring you that this is a commitment I also have made. |
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